Association Petit Cœur de Beurre : Soutenir les personnes atteintes de cardiopathie congénitale

Today, we are embarking on a journey to discover Petit Cœur de Beurre. This association was founded by parents who want to improve the daily lives of people with congenital heart disease.

Congenital heart disease is a heart abnormality present from birth. It affects the structure of the heart, such as its chambers or valves, or its blood vessels. All heart defects can be operated on, but some are more challenging than others. After the operation, some require medical treatment. All have a wide impact with physiological, psychological, or cognitive issues.

Today, our guest is Jean-Charles Marguin, co-founder of Petit Cœur de Beurre. He explains how the association actively contributes to supporting patients and their families, and above all to break their isolation.

In addition to supporting research, the association collaborates with medical teams to improve the quality of life for patients. It provides comfort equipment to hospitals, such as beds for companions, digital tablets, etc.

At the heart of its missions, the association supports patients and their families, both in hospitals and outside, throughout the year. Petit Cœur de Beurre has a network of volunteers throughout the country. These carefully selected and trained volunteers provide close support to patients and their families, as well as to healthcare professionals.

The association stands out for its ability to integrate knowledge and personal experiences, in order to better understand and act daily with sick people. One of its main objectives is to fight against isolation, by offering a platform for exchange and sharing for and by those who have experienced similar experiences.

Between volunteering and donations, there are several ways to help the association. Feel free to visit their website to learn more about their actions.